Living well with pulmonary fibrosis – a lifeline for Western Australians

Pulmonary fibrosis (PF), particularly idiopathic pulmonary fibrosis (IPF), poses unique challenges to patients and the need for comprehensive information and support is vital.

Beyond symptoms such as cough and shortness of breath, patients often grapple with limited treatment options, significant side effects from medication and a sense of isolation.

The Institute for Respiratory Health seeks to change this by offering the first patient education event dedicated to pulmonary fibrosis in Western Australia.

Associate Professor Vidya Navaratnam from the Institute recognised the need for the event, she said “Hospital appointments are often not long enough for patients to gather essential information about their condition.

“’Our event – Living Well with PF is designed to fill this gap by providing patients with a comprehensive understanding of their condition and offering practical insights into managing their health.”

The event will feature a variety of topics crucial to PF management, including:

• The importance of exercise and pulmonary rehabilitation.
• Strategies for managing cough and improving respiratory health.
• Living with oxygen and tips for enhancing daily life.

Key members of the respiratory community, including nursing, physiotherapy, speech pathology and social work will deliver short presentations to provide education and advice.

Additionally, attendees will gain insights into the role of clinical trials and learn about ongoing PF research projects conducted by the Institute for Respiratory Health. This information aims to empower patients with knowledge about the latest medical advancements relating to the disease.

The event is open to anyone with PF or IPF, regardless of where they receive their care. Associate Professor Navaratnam said, “Our goal is not only to educate but to create a supportive community for individuals facing the challenges of PF.  

“Many patients have expressed feeling isolated. We hope this event will serve as a catalyst for building connections within the PF community and keep them informed of the latest treatments and healthcare in the area to ensure they have a good quality of life.”

The event will be held on Tuesday 13 February at the Harry Perkins Institute in Nedlands, for more information and to register visit – resphealth.org.au/event/living-well-with-pulmonary-fibrosis